This is a very difficult post for me to write today. Partially because I thought I had about 6 more weeks to work on it. God had different plans for me.
Most of you know Amelia was born with a condition called Radial Dysplasia. Basically her radius bone did not grow properly in her left arm and that caused her left thumb to be abnormally formed. She is missing several bones, tendons, and muscles which causes her thumb to be non-functional. Associated with this condition comes heart defects, kidney problems, and blood concerns. She has 3 heart deformities--a hole, mitral valve prolapse, and a bicuspid valve. I won't go into all of the details here but just know her heart is healing and she should not ever need surgery. She has outgrown her kidney issues, and we are trusting God that she does not have any blood issues.
We had our first appointment when she was 8 days old at Texas Scottish Rite Hospital when we learned about her Radial Dysplasia. That day forever changed our lives. Since then we have seen numerous doctors, had a variety of different procedures, and watched our baby daughter go through things a parent would never wish they had to encounter. I think every parent would agree that they would do anything to be put in that child's place during those situations. This week will be no different.
On Wednesday (instead of October 17) Amelia will be having surgery on her hand to remove her thumb. Her index finger will be moved to its place. This procedure is called pollicization, and it is the most common surgery for her condition. The specialists at Scottish Rite have assured us that they want Amelia to have a hand that is as functional as possible. We agree this is what she needs, but it has been difficult for us to accept. She will be in a cast past her elbow for 6 weeks and then a splint.
Although I know she will adapt in her own way I feel the burden of all of her problems. I worry about the future because the world can be cruel to those that are different. All we can do as her parents are to remind her that she is created in the image of God and He has awesome things in store for her.
So instead of doing something totally superficial Wednesday when my daughter normally goes to mother's day out I will be in constant prayer for Amelia thanking God for the perfect child I have and for the surgeons who are making her life better.
1 day ago